Foster Health Laboratory

The Foster Health Lab’s mission is to improve the health and participation of children with medical complexity and disability in a family-centered manner.

The lab’s methods span traditional health services research, health care policy analysis, quality measurement development, and health service innovation and implementation.

In particular, the lab focuses on improving how home and community-based services benefit patients and their families. To achieve this, the lab partners with families from project design through implementation.

Research Highlights

HOMeVent4Kids: HOME-BASED OPTIMIZATION OF MECHANICAL VENTILATION FOR CHILDREN

Funders: National Heart, Lung, and Blood Institute, National Institutes of Health and Children’s Research Fund Junior Board (CRFJB) Research Scholar Award

Description: The goals of this grant are to understand the patient, family caregiver, and health system level factors that affect how long children need to use home ventilation (breathing machines) and to develop and pilot a feasible, family-centered, and clinical useful remote monitoring system for in-home ventilation management.

PAID FAMILY CAREGIVING FOR CHILDREN WITH MEDICAL COMPLEXITY: CHARACTERIZATION OF A WORKING MULTI-STATE CARE MODEL

Funder: Children with Special Health Care Needs Research Network, Health Resources and Services Administration (HRSA)

Description: The goal of this project is to characterize the patients and employees in Colorado’s Medicaid-based paid-family certified nursing assistant (CNA) home healthcare program, as working model of paid family caregiving for children with medical complexity.

DEVEOPMENT OF A PATIENT AND CAREGIVER REPORTED INSTRUMENT OF THE ACCESS TO AND QUALTITY OF HOME HEALTH CARE FOR CHILDREN WITH MEDICAL COMPLEXITY

Funder: Lucile Packard Foundation for Children’s Health

Description: The goal of this project is to develop a validated family-reported instrument to evaluate the access and quality of home care services for children with medical complexity.

ADVANCING A FAMILY-CENTERED EVIDENCE-BASE FOR PEDIATRIC HOME HEALTH CARE

Funder: Lucile Packard Foundation for Children’s Health

Description: The goal of this project is to generate high-quality evidence regarding how state-level policies affect access to pediatric home health services, via a special partnership between Foster Health Lab and Family Voices.

ACHIEVING EQUITABLE PARTICIPATION FOR ALL CHILDREN: ACCESSING ACCESS TO HOME AND COMMUNITY BASED SERVICES AT LURIE CHILDREN'S

Funder: Ann & Robert H. Lurie Children’s Hospital of Chicago Community Health Grants

Description: The major goal of this project is to conduct a current state assessment of Lurie Children’s patients requiring home- and community-based services, including current structures and processes for referral/linkage, best practices, and gaps/needs.

Principal Investigator

Lab Members

Leah West, MS, CCLS

Research Program Manager

Cameron Cooper, MS

Behavioral Research Coordinator II

Peter Walsh

Behavioral Research Coordinator II